OMERACT 2018 Modified Patient-reported Outcome Domain Core Set in the Life Impact Area for Adult Idiopathic Inflammatory Myopathies

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Abstract:

OBJECTIVE: To present and vote on a myositis modified patient-reported outcome core domain set in the life impact area at the Outcome Measures in Rheumatology (OMERACT) 2018. METHODS: Based on results from international focus groups and Delphi surveys, a draft core set was developed. RESULTS: Domains muscle symptoms, fatigue, level of physical activity, and pain reached >/= 70% consensus and were mandatory to assess in all trials. Domains lung, joint, and skin symptoms were mandatory in specific circumstances. This core set was endorsed by > 85% at OMERACT 2018. CONCLUSION: We propose a life impact core set for patients with idiopathic inflammatory myopathies and will proceed with instrument selections.

SEEK ID: https://ldh.drfz.imise.uni-leipzig.de/publications/78

DOI: 10.3899/jrheum.181065

Projects: German National Database of the Regional Cooperative Arthritis Centres (...

Publication type: Journal

Journal: J Rheumatol

Citation: J Rheumatol 46(10):1351-1354

Date Published: 2019

URL: https://www.ncbi.nlm.nih.gov/pubmed/30770504

Registered Mode: imported from a bibtex file

Authors: M. Regardt, C. A. Mecoli, J. K. Park, I. de Groot, C. Sarver, M. Needham, M. de Visser, B. Shea, C. O. Bingham, I. E. Lundberg, Y. W. Song, L. Christopher-Stine, H. Alexanderson

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Regardt, M., Mecoli, C. A., Park, J. K., de Groot, I., Sarver, C., Needham, M., de Visser, M., Shea, B., Bingham, C. O., III, Lundberg, I. E., Song, Y. W., Christopher-Stine, L., & Alexanderson, H. (2019). OMERACT 2018 Modified Patient-reported Outcome Domain Core Set in the Life Impact Area for Adult Idiopathic Inflammatory Myopathies. In The Journal of Rheumatology (Vol. 46, Issue 10, pp. 1351–1354). The Journal of Rheumatology. https://doi.org/10.3899/jrheum.181065
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Created: 15th Jul 2025 at 08:48

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