Is primary Sjogren’s syndrome an orphan disease? A critical appraisal of prevalence studies in Europe

Using advanced epidemiological methods, Programme Area 2 investigates biological, psychosocial and health care-related factors that influence the course and outcome of rheumatic diseases in adults and children. Our research mainly builds on long-term observational studies, conducted in close cooperation with a nationwide network of more than 500 paediatric and adult rheumatology specialists. In addition, specific population-based analyses are carried out using data from health insurance companies ...

The NDB is a long-term prospective observational study of the health care situation in patients with inflammatory rheumatic diseases under routine rheumatology care in Germany. The NDB provides data on healthcare for patients with all forms of inflammatory rheumatic diseases, including arthritides, spondyloarthritides, connective tissue diseases and vasculitides. Physician- and patient-reported data are annually collected comprising disease activity, medication, comorbidities, disease impact and ...