Projects

Since 2007, the JuMBO registry examines the long-term effects of new rheumatological therapies in patients who developed juvenile idiopathic arthritis (JIA) in childhood. This registry is a subsequent database to the BiKeR registry (headed by Prof. Dr. Horneff of St. Augustin), and its function is to monitor the health of adults post-pediatric rheumatology treatment.The present study focuses on the safety and efficacy of new disease-modifying antirheumatic drugs (DMARDs) and the long-term prognosis ...

The RABBIT-SpA disease register, established in May 2017, aims to investigate the long-term effectiveness and safety of therapies used in spondyloarthritis. Data from rheumatologists and patients on disease progression, treatment, therapy outcomes, and therapy safety are collected to gain a better understanding of the different treatment approaches. Aspects related to quality of life, mental health, and work ability are also the focus of our analyses. The web-based documentation system was developed ...

RABBIT is the German register for the long-term observation of therapy with biologics, biosimilars and Janus kinase (JAK) inhibitors in adult patients with rheumatoid arthritis. The project was initiated in 2001 by the German Rheumatology Research Center (DRFZ) in coordination with the German Society for Rheumatology, the Professional Association of German Rheumatologists and the Competence Network Rheumatology. RABBIT is involved in international research and co-operates with other European ...

The National Pediatric Rheumatologic Database (NPRD) has been conducted nationwide since 1997. The Gesellschaft für Kinder- und Jugendrheumatologie (GKJR) recommends participation as a quality assurance measure. As part of the documentation, children and adolescents with inflammatory rheumatic diseases who visit pediatric rheumatology centers once a year, along with their treating physicians, are asked to complete standardized doctor and patient or parent questionnaires. The physicians provide ...

Rhekiss is a nationwide register to record the course of disease in patients with inflammatory rheumatic diseases who wish to have children and are pregnant. Since 2015, in collaboration with the Rheumazentrum Rhein-Ruhr e. V., we have been prospectively collecting data on the course and outcome of the pregnancy and the development of the child up to its second birthday. The inflammatory rheumatic diseases covered by Rhekiss include rheumatoid arthritis, spondyloarthritis, psoriatic arthritis, ...

The NDB is a long-term prospective observational study of the health care situation in patients with inflammatory rheumatic diseases under routine rheumatology care in Germany. The NDB provides data on healthcare for patients with all forms of inflammatory rheumatic diseases, including arthritides, spondyloarthritides, connective tissue diseases and vasculitides. Physician- and patient-reported data are annually collected comprising disease activity, medication, comorbidities, disease impact and ...